A year ago today we finally packed our bags and left the hospital for the first time ever.
Its been a long year. And its weird to think how far we have come. This time last year I had a checklist of stages to go through during a tube feed. Our feeding pump had just been ordered so we could do pump feeds at home. I never thought I would manage a tube I couldn't pass on my own, syringes, and pumps and loads of medicines.
Here we are a year later having just been discharged from Gastro clinic. They have agreed that Robyn absolutely doesn't need a PEG tube or button fitted. Yay.
Score = Parents 1, medical professionals nil.
In other fantastic news Daddy has been offered a new job today as well so things are looking up for us all round.
First pic at home together. Pics at home this week
One day I will get them both to look happy about being in a picture together without having to bribe them both with milk.